Informational Materials
Visual supports are evidenced based practice tools which may be used to enhance the communication skills of individuals impacted by Autism Spectrum Disorders (ASD). Parent, doctors, and other professionals serving individuals with ASD will want to print these materials as they prepare for the next health and wellness related appointment.
Adulthood
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My Health Report ' For Regular Visits to Your Doctor Medical professionals have very limited time to gather important information during medical appointments. FCIC's My Health Report has been designed with feedback from family physicians to help individuals and family caregivers give relevant health information as efficiently as possible. By completing this information and sharing it with your doctor, it will help him/her determine why you are feeling sick. It also helps to free up more time for communication, and discussion of what treatment options are available to address your health issue. Dr. Liz Perkins would welcome any feedback or comments regarding My Health Report at eperkins@usf.edu. |
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Critical Pathways to Adulthood: Health Literacy, Communication and Self-Management |
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Pathways to Adulthood: Health Care Self-Management Electronic Resource List |
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Caregiver Health
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Diagnosing ASD
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Young Children with Autism Spectrum Disorder: What to Look For |
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Signs to look for prior to 24 months. This is a small tri-fold business size card. |
Doctor and Hospital Visits
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How do I Talk to my Doctor? (Education for Lifelong Health Fact Sheet Series) This series of factsheets were designed for people with mild intellectual disability. They can be used to help raise awareness about serious health conditions that become more common with increasing age. Usual treatments and prevention tips are also highlighted. |
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Improving Communication with Patients who have Intellectual and Developmental Disabilities (Physicians’ Fact Sheet Series) This is a new series of factsheets aimed primarily at Physicians and other health professionals to have succinct information about a range of topics regarding care of adults with intellectual/developmental disabilities. Dr. Liz Perkins (eperkins@usf.edu) would welcome any feedback or comments or suggestions for topics. |
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FCIC's My Health Passport is a health advocacy document that describes the unique supports and preferences of an individual. It is designed to be shared with many types of healthcare providers, in clinic and hospital settings, especially for those who are not very familiar in providing care to individuals with intellectual/developmental disabilities. Hard copies of My Health Passports are currently available, and can be ordered free of charge by contacting Dr. Liz Perkins or (813) 974-7076. The forms are also available for free download.
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Autism & The Hospital Emergency Room This booklet helps health care providers know about autism and how to make an emergency room experience manageable for all.
Trastorno del Espectro Autista & La Sala de Emergencia del Hospital Guía práctica para profesionales de la salud para satisfacer las necesidades de las personas con Trastorno del Espectro Autista (TEA) |
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Your Next Patient Has Autism Brochure The Education Subcommittee of the North Shore-Long Island Jewish Health System Autism Steering Committee has developed a brochure “Your Next Patient Has Autism...” for the many health professionals – nurses, physicians, technicians and others – who provide services for children on the autism spectrum. Parents will want to print this brochure and take it to the healthcare professionals that works with their child because it provides strategies for working with children who have autism spectrum disorders. |
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Hygiene and Grooming
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Education for Lifelong Health: What I Should Know About Good Health and Hygiene This series of factsheets were designed for people with mild intellectual disability. They can be used to help raise awareness about serious health conditions that become more common with increasing age. Usual treatments and prevention tips are also highlighted. |
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Dental Care & Visits
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Going to the Dentist Social Experience Booklet The healthy folks at CARD-USF developed this social experience booklet “Going to the Dentist”. The booklet can be used to help prepare and know what to expect before a visit with your dentist. |
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Dental Care for Individuals with ASD A presentation for dental professionals to learn ways to teach children proper oral hygiene, to discuss a variety of ways to support and facilitate good oral hygiene practices at home, and to learn positive behavioral strategies to implement for dental office visits. |
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A visual schedule breaks down large tasks into smaller steps. This schedule shows tooth-brushing and flossing steps. |
Mental Health
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Autism Spectrum Disorder & Mental Health Issues A guidebook for mental health professionals. |
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Autism and Mental Health Issues A guidebook on mental health issues affecting individuals with Autism Spectrum Disorders. (3MB) |
Medications
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Your Pharmacist: Who's the Medication Expert in the White Coat? (YouTube) |
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Physical Activity/Weight Management
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An overview of recent research and literature reviews dealing with risk factors for obesity in ASD and developmental disabilities. |
Sleep
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Useful Links
This page includes links to both internal (CARD) and external (non-CARD) websites. External links are selected and reviewed when the page is published. However, the CARD is not responsible for the content of external websites. The CARD website does not accept submissions or requests.
A Snapshot of the Florida Medicaid Managed Medical Assistance Program
The Florida Medicaid program is implementing a new system through which Medicaid enrollees will receive services. This program is called the Statewide Medicaid Managed Care Managed Medical Assistance program.
Autism Speaks Autism Treatment Network (ATN)
Information for Physicians and Researchers.
Tool Kits: Helpful information on many topics, including blood drawing, dental professionals, and medication decision aid.
Continuing Education for primary health care providers.
This website has over 8,000 1-2 minute videos on a wide variety of parenting topics, including a number of topics related to parenting a child with mental health challenges. This site features expert advice from NAMI Medical Director, Ken Duckworth, and parenting insight from Jay Gaylen, a NAMI Basics teacher from NAMI Orange County.
Help Autism Now Society (HANS)
Autism Physician Handbook. The handbook is viewable as a slideshow in English, and in PDF format in several languages.
Includes a description of the Florida waiver programs and available services.
A service of the U.S. National Library of Medicine. This is an overview page that provides links to several NIH resource sites for information on autism spectrum disorders.
Sleep Tool-Kits, Autism Treatment Network
These toolkits provide helpful information and strategies for improving sleep.
Resources
Materials & Links
- Adult Issues
- Advocacy
- Autism Spectrum Disorder
- Behavior
- Communication
- Community
- Early Screening & Intervention
- Education
- For Kids
- Health & Wellness
- Life Skills
- Nutrition
- Parenting & Family
- Safety
- Tragic Events
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